Although, this isn’t how we prefer to spend our days or nights. We are so thankful that God led us to this hospital and put the right doctors in front of us to get us the answers we have been praying about for months.
Many didn’t know... because I didn’t share it publicly that we had been battling with Jackson’s health and pain since last July. And actually his health has never been great since Birth. Seeing specialist after specialist. So many nights I prayed for God to open my eyes or shine a light on what it was that we were missing. I knew in my heart that something was wrong. On the way to Riley on the 29th... I prayed specifically for quick answers as he had been struggling for so many months. We so badly wanted to know what was going on so we could help him get better. Like I mentioned before I felt strongly he had Leukemia. But what mother self disgnosis their child with such a horrible disease. I sounded crazy and felt even crazier. I am so glad I had the courage to speak up and tell the ER doctor my concerns. I am also so very thankful that she listened to me and didn’t think I was crazy.
Riley’s has been amazing. The doctors, nurses and PCAs, cleaning staff etc have been amazing. I am learning that several nurses have had children with leukemia and or had leukemia as young kids themselves. So it’s been nice to learn about their journeys as well.
Today I talked Jackson in to going on a short walk with me. He was excited to look at all the toys in the play room and tell me what he wanted to play with when he isn’t sick anymore. Although he was bummed out he still couldn’t play, there were no tears today. Getting stronger every day.
He has slept most of the day. 🙏🏻 I believe that is when God is hard at work healing him most.
ANC numbers still zero - but they are seeing signs that they believe he will start to go up soon.
NO fever again today 🙌🏻
Mouth sores improving, the main one peeled off today.
Again, thank you for following Jacksons journey’ thank you for your continued love and support. Even if We don’t get a chance to respond Matt and I enjoy reading all the comments and messages.
Thanks to everyone who sent hats his way. We are excited to try them.
Love to you all 🧡
#JacksonsJourney #MyTinySuperHero
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