Spider-Man surprised him and raced all his friends.
Friday, July 26, 2019
Spider-man
Jackson had a great time celebrating his 6th birthday a little early!
Spider-Man surprised him and raced all his friends.
Spider-Man surprised him and raced all his friends.
Tuesday, July 23, 2019
Heading Home
The Good Lord has answered all our prayers! 🧡
Jackson’s ANC is 384 today and he gets to bust out of here 👏🏻
This was the shortest and best round yet only 26 days and we are counting our blessings that he did so well this round! Praying the final round goes just as smooth!
He is due back for his 4th round August 2nd!
#JacksonStrong #Superherostrong #PeaceoutRiley #seeyasoon
Jackson’s ANC is 384 today and he gets to bust out of here 👏🏻
This was the shortest and best round yet only 26 days and we are counting our blessings that he did so well this round! Praying the final round goes just as smooth!
He is due back for his 4th round August 2nd!
#JacksonStrong #Superherostrong #PeaceoutRiley #seeyasoon
Sunday, July 21, 2019
Hanging out
Day 25 -
Sorry for the delay in the updates. Jackson spent the last 4 days with his Dad while I went home to be with Macy and Colby for a bit.
Jackson continues to do well this round. We are praising God daily for how well Jackson has tolerated this round!
His anc is at 87 today. We are hoping to be released in the next few days. Every doctor has different standards on when they feel it’s okay to be released. Looks like we have a more lenient one on this week. So we shall see.
With him feeling so well we are all ready to bust out of here!
After this small break we will be back for his 4th and final round of treatment! 👏🏻🙏🏻🧡
Sorry for the delay in the updates. Jackson spent the last 4 days with his Dad while I went home to be with Macy and Colby for a bit.
Jackson continues to do well this round. We are praising God daily for how well Jackson has tolerated this round!
His anc is at 87 today. We are hoping to be released in the next few days. Every doctor has different standards on when they feel it’s okay to be released. Looks like we have a more lenient one on this week. So we shall see.
With him feeling so well we are all ready to bust out of here!
After this small break we will be back for his 4th and final round of treatment! 👏🏻🙏🏻🧡
Wednesday, July 17, 2019
Special visitors
We’re feeling very grateful to have had a wonderful visit with Jackson & Cynthia Myerscough today at Riley in Indy. It was so incredible to see him laughing & playing with the boys. It truly made my Heart so full! Please continue to pray for our SuperHero & his precious family.
Monday, July 15, 2019
When do we eat?
Jackson is doing amazing right now!
Almost too good that it makes me nervous to even talk about it!
He had a rough couple days but has been doing great since.
He got sick and his feeding tube came out. Since he was feeling better and still eating we opted to leave the feeding tube out. As long as he continues to eat and drink he won’t need it replaced!
His pain is mild and he hasn’t required any pain medicine for a couple days.
We are on day 7 of ANC at Zero. But his cultures came back negative for no infections! 🙏🏻 He is still on Vory (a strong antibiotic) twice a day from his previous infections last round. I believe that and all the prayers are keeping him protected this round. It’s so nice to see him feeling so well! We have been passing the time eating, playing trouble, going on walks, talking to babies, playing in the play room, playing video games and watching movies, and scaring the nurses.
And today we made protein shakes together.
It’s so amazing seeing him so well compared to the last two rounds! Praise the Lord because Jackson Definitely deserves an easy round!
#JacksonJourney #JacksonStrong #Round3 #day18
Almost too good that it makes me nervous to even talk about it!
He had a rough couple days but has been doing great since.
He got sick and his feeding tube came out. Since he was feeling better and still eating we opted to leave the feeding tube out. As long as he continues to eat and drink he won’t need it replaced!
His pain is mild and he hasn’t required any pain medicine for a couple days.
We are on day 7 of ANC at Zero. But his cultures came back negative for no infections! 🙏🏻 He is still on Vory (a strong antibiotic) twice a day from his previous infections last round. I believe that and all the prayers are keeping him protected this round. It’s so nice to see him feeling so well! We have been passing the time eating, playing trouble, going on walks, talking to babies, playing in the play room, playing video games and watching movies, and scaring the nurses.
And today we made protein shakes together.
It’s so amazing seeing him so well compared to the last two rounds! Praise the Lord because Jackson Definitely deserves an easy round!
#JacksonJourney #JacksonStrong #Round3 #day18
Friday, July 12, 2019
Update
Round 3 - Update
Yesterday Jackson had a platlette transfusion and then his pain started creeping back. His neck pain is returning and his mouth is hurting. We know that Mucositis is starting. Later in the day he started really complaining about his bottom hurting. The doctors said it’s the mucositis from the inside that is causing him severe pain. Kinda like how his mouth was the first round reversed inside his rectum.
His pain continued through the night so we had to start morphine again. Around Midnight he spiked a fever so we had to draw labs to send cultures off to check for any new infections. Good news is he hasn’t had a fever since 2am this morning!
Today he has slept a lot but not before getting a couple board games in. They are keeping up on the morphine so he is comfortable. Tonight they decided to put a NG feeding tube in. You can imagine how that went. When it was done he looked at me and said “Why mommy” with tears pouring down his face. When I explained it was going to help put food in his tummy to keep him healthy and strong, he said “Ohtay” - he amazes me more everyday with his strength and patience. The Tube doesn’t seem to bother him at all now that it is in.
They wanted to get head of it and get it placed before he started getting worse. They explained that feeding the stomach and allowing it to absorbed nutrients through the gut is what is best for Jackson and could also help his body fight the mucositis and even recover a little quicker. In the past we have always done IV nutrients so it didn’t go through the stomach. We are praying that is true and maybe this will be the trick to making him feel better through the remainder of this stay.
We are 13 days in and this is just the beginning of him feeling crummy. We are praying so hard that this is the worst of it and he bounces back quickly. But we are also prepared for it to get worse before it gets better.
It breaks my heart how one day he can be laughing, playing and feeling well and the next he is in so much pain and feels to terrible. Yesterday he wasn’t hooked up to anything and by today Fred (His medical pole) is loaded with all kinds of medications.
Even through all of this. Jackson will continue to tell us he is fine. Yes he fights the nurses when he has to get poked, or his dressing for his central line needs changed, or putting a feeding tube in. But he quickly rebounds without complaining. He is getting so brave and isn’t scared of as much. For example they brought in an X-ray machine to X-ray his chest to ensure the feed tube was placed into the stomach correctly. He laid nicely and helped the tech.
We are praying for no infections and comfort as he endures the next couple weeks.
Xoxo
Yesterday Jackson had a platlette transfusion and then his pain started creeping back. His neck pain is returning and his mouth is hurting. We know that Mucositis is starting. Later in the day he started really complaining about his bottom hurting. The doctors said it’s the mucositis from the inside that is causing him severe pain. Kinda like how his mouth was the first round reversed inside his rectum.
His pain continued through the night so we had to start morphine again. Around Midnight he spiked a fever so we had to draw labs to send cultures off to check for any new infections. Good news is he hasn’t had a fever since 2am this morning!
Today he has slept a lot but not before getting a couple board games in. They are keeping up on the morphine so he is comfortable. Tonight they decided to put a NG feeding tube in. You can imagine how that went. When it was done he looked at me and said “Why mommy” with tears pouring down his face. When I explained it was going to help put food in his tummy to keep him healthy and strong, he said “Ohtay” - he amazes me more everyday with his strength and patience. The Tube doesn’t seem to bother him at all now that it is in.
They wanted to get head of it and get it placed before he started getting worse. They explained that feeding the stomach and allowing it to absorbed nutrients through the gut is what is best for Jackson and could also help his body fight the mucositis and even recover a little quicker. In the past we have always done IV nutrients so it didn’t go through the stomach. We are praying that is true and maybe this will be the trick to making him feel better through the remainder of this stay.
We are 13 days in and this is just the beginning of him feeling crummy. We are praying so hard that this is the worst of it and he bounces back quickly. But we are also prepared for it to get worse before it gets better.
It breaks my heart how one day he can be laughing, playing and feeling well and the next he is in so much pain and feels to terrible. Yesterday he wasn’t hooked up to anything and by today Fred (His medical pole) is loaded with all kinds of medications.
Even through all of this. Jackson will continue to tell us he is fine. Yes he fights the nurses when he has to get poked, or his dressing for his central line needs changed, or putting a feeding tube in. But he quickly rebounds without complaining. He is getting so brave and isn’t scared of as much. For example they brought in an X-ray machine to X-ray his chest to ensure the feed tube was placed into the stomach correctly. He laid nicely and helped the tech.
We are praying for no infections and comfort as he endures the next couple weeks.
Xoxo
Wednesday, July 10, 2019
ANC zero and Aunt Shannon
Jackson’s ANC hit Zero today. It’s always such a double sided feeling!
Like we know that his ANC dropping tells us that the chemo is doing it’s job. But with an ANC of Zero brings all the ugly sicknesses which we hate seeing Jackson go through!
So we are praying that he skates through this round with minimal side effects and NO infections!
Jackson has had a good first 10 days of this stay so far! He had some special visitors. Aunt Shannon Helmuth was home from Colorado and made the trip to spend the day with him.
Daddy took over yesterday so I could come home with Macy and Colby for a couple days.
Oh and Allie update.... she was able to go home on July 3rd! She is officially done with her chemo treatments and is getting stronger every day! Her going home was so amazing and we can’t wait for Jackson to ring his bell and look back on how he kicked Cancer!
Like we know that his ANC dropping tells us that the chemo is doing it’s job. But with an ANC of Zero brings all the ugly sicknesses which we hate seeing Jackson go through!
So we are praying that he skates through this round with minimal side effects and NO infections!
Jackson has had a good first 10 days of this stay so far! He had some special visitors. Aunt Shannon Helmuth was home from Colorado and made the trip to spend the day with him.
Daddy took over yesterday so I could come home with Macy and Colby for a couple days.
Oh and Allie update.... she was able to go home on July 3rd! She is officially done with her chemo treatments and is getting stronger every day! Her going home was so amazing and we can’t wait for Jackson to ring his bell and look back on how he kicked Cancer!
Friday, July 5, 2019
Fireworks!
Jackson had a wonderful Time watching the fireworks from the roof top.
I was so worried he would miss out and not get to see any fireworks this year. As soon as we stepped on top of the roof fire works were going off in all directions around us. God made sure Jackson got the best show tonight!
Thanks Uncle Jeff Ianello for the head band! Thanks Grandma Carol Myerscough for coming and spending the day with us!
#JacksonsJourney #July2019 #RileysChildrensHospital #Fireworks
I was so worried he would miss out and not get to see any fireworks this year. As soon as we stepped on top of the roof fire works were going off in all directions around us. God made sure Jackson got the best show tonight!
Thanks Uncle Jeff Ianello for the head band! Thanks Grandma Carol Myerscough for coming and spending the day with us!
#JacksonsJourney #July2019 #RileysChildrensHospital #Fireworks
Wednesday, July 3, 2019
3rd of July!
Jackson finished his Final day of Chemo for this round! So far Jackson has tolerated the Chemo well each day and feels pretty good. He is tired, and emotional but otherwise feels well. His counts are still really high so that helps. We know that in 7-10 days after the start of Chemo is when his numbers will drop. We also know to expect him to have really bad days after his counts drop.
We are praying that he doesn’t develop any infections this round. CT scans showed his lungs clear when we arrived. He is still on a very strong antibiotic for the remainder of this round for precaution! The Staff here at Riley said to me the other day that each round is tougher than the last. Not only is the chemo stronger, it will keep his body down longer and his body is weaker each round. Opening a bigger window for him to get infections. So continued prayers are always welcomed and very much appreciated.
Tomorrow is the 4th of July and I am not going to lie. I am so sad that my family will not all be together to celebrate. I’m fighting back tears just writing this. Jackson loves the fire works. The 4th is always a holiday we spend all together.
The Hospital said they allow the kids to go to the Roof top as you can see the Fire works from there. 🎇🎆
So that is awesome, but definitely won’t be the same. I am trying to continue to remind myself to not be sad and to be grateful each day. Some parents don’t get to celebrate with their children at all, as they are no longer on earth. Some Children have it way worse than Jackson and I am trying to focus on the good things going for him. So for now in this extremely hard season, our lives are not normal, our family is separated and our hearts are torn and saddened. But.... WE know this is only temporary and we will get through it.
Matt is taking Macy and Colby boating and Camping. They deserve some normalcy and summertime fun! Knowing Macy and Colby are able to go and do fun things helps my aching momma heart some. Being away from them is just as hard as being in the Hospital with Jackson.
Matt continues to be a Rock for our family. This is so hard on him as well. He doesn’t get enough praise or recognition for all he does. Like how he slept on the floor so that his boys could sleep in bed with me when we were home last. They won’t ask to sleep with me forever and I can’t bare the thought of saying No and giving up a night of them feeling loved, safe, or comfort knowing we are not guaranteed tomorrow.
Tomorrow we get to celebrate America’s Freedom. 🇺🇸
I hope you all have a wonderful Holiday! Hug your loved ones and hold your babies tight! Life is too short and too sweet not to wake up each day and be grateful that God allowed us another day on earth!
God Bless you all 🧡
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