Hills and Valleys

The last couple days have been busy. I also struggle to keep updating because it’s just a terrible cycle from one day to the next and I feel like I am telling the same story over and over. One day he feels good and then bam he doesn’t.

By now we expect it even though we try to be optimistic. We know the signs of when he is going to spike a fever, we know when the mucositis is brewing, we know when his pain starts to creep back in, and unfortunately to the nurses and doctors if those things didn’t happen then they worry. The have explained that if he didn’t get sick they would be more worried that the treatment wasn’t working.  So in some weird way I guess this is a good thing.

Jackson’s Numbers tanked to zero on Sunday the 18th by Sunday night his pain had returned and he spiked a fever Monday morning. The last two days he has battled vomitting, mouth sores, neck pain, and high fevers and tested positive for a bacteria infection. So as always he is on 3 different Antibotics. We are praying that the Antibotics do their job and that he doesn’t pick up anything else along the way. He received platlettes yesterday and will have a blood transfusion today. His ANC is still at zero. Praying his numbers rebound healthier and stronger than ever and in a timely manner.

He woke up still in pain but the fever has been gone for 18 hours. We are praying he is on the upswing. We have about 2 more weeks.

Thank you for all the messages checking in on our little guy. He is hanging in there and of course “he is Fine” according to him.