Jackson finished his Final day of Chemo for this round! So far Jackson has tolerated the Chemo well each day and feels pretty good. He is tired, and emotional but otherwise feels well. His counts are still really high so that helps. We know that in 7-10 days after the start of Chemo is when his numbers will drop. We also know to expect him to have really bad days after his counts drop.
We are praying that he doesn’t develop any infections this round. CT scans showed his lungs clear when we arrived. He is still on a very strong antibiotic for the remainder of this round for precaution! The Staff here at Riley said to me the other day that each round is tougher than the last. Not only is the chemo stronger, it will keep his body down longer and his body is weaker each round. Opening a bigger window for him to get infections. So continued prayers are always welcomed and very much appreciated.
Tomorrow is the 4th of July and I am not going to lie. I am so sad that my family will not all be together to celebrate. I’m fighting back tears just writing this. Jackson loves the fire works. The 4th is always a holiday we spend all together.
The Hospital said they allow the kids to go to the Roof top as you can see the Fire works from there. 🎇🎆
So that is awesome, but definitely won’t be the same. I am trying to continue to remind myself to not be sad and to be grateful each day. Some parents don’t get to celebrate with their children at all, as they are no longer on earth. Some Children have it way worse than Jackson and I am trying to focus on the good things going for him. So for now in this extremely hard season, our lives are not normal, our family is separated and our hearts are torn and saddened. But.... WE know this is only temporary and we will get through it.
Matt is taking Macy and Colby boating and Camping. They deserve some normalcy and summertime fun! Knowing Macy and Colby are able to go and do fun things helps my aching momma heart some. Being away from them is just as hard as being in the Hospital with Jackson.
Matt continues to be a Rock for our family. This is so hard on him as well. He doesn’t get enough praise or recognition for all he does. Like how he slept on the floor so that his boys could sleep in bed with me when we were home last. They won’t ask to sleep with me forever and I can’t bare the thought of saying No and giving up a night of them feeling loved, safe, or comfort knowing we are not guaranteed tomorrow.
Tomorrow we get to celebrate America’s Freedom. 🇺🇸
I hope you all have a wonderful Holiday! Hug your loved ones and hold your babies tight! Life is too short and too sweet not to wake up each day and be grateful that God allowed us another day on earth!
God Bless you all 🧡
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