Wednesday, June 5, 2019

Colby’s Birthday!

~June 5, 2019 ~

Today is Colby’s Birthday so we celebrated at the hospital with Jackson.
While Grandma Carol Myerscough sat with Jackson we took the big kids to an indoor Go Kart center.  Aunt Laura Myerscough Ianello and the girls were able to stop by for a visit.

Jackson is getting better each day. We still haven’t been able to identify the type of fungal infection he has yet. The doctors explained that children with AML are too sick and are at too high of a risk to wait to find out what the infection is to then treat it, so they treat with multiple broad spectrum antibiotics to cover everything while they are doing testing. In doing so sometimes it makes it impossible for them to identify the infection as the Antibotics have already started working.  They will continue to treat for a fungal infection for 3 months.

Jackson has started his medicine to stimulate his stomach so he will start eating on his own so we can remove the nutrients from his central line.. He is off morphine as his pain has gotten so much better. He is still on several Antibotics. His ANC was 208 today! The doctors are saying they want his ANC over 500 before we can leave as they are also waiting for other labs to return as well.

We are all ready to be home again and together for a bit. Having our family in two different states and never all together is hard. Seeing Jackson sad and upset because all he wants is to go somewhere or his brother and sister to stay with him breaks my heart. It literally causes me pain to see him so sad. Having to leave any of the kids to go stay with the other is so hard on my momma heart.

Praying he will get to go home soon.

Thanks for all of the prayers and thanks for checking in on our little super hero! Sorry for the delay in updates.

Thanks Rosie Pagliai Lozano for letting Vincent come and hang out. Jackson was thrilled to see him.

Thanks to Immanuel Lutheran Mommas for sending Jackson a big box of goodies! Thank you Tammy Spillman-Zuber for Jacksons gifts! Sanya Sharma Myerscough Jackson is over the moon excited about his giraffe!









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