I went over to Indianapolis today to see how our little guy is doing. When in reality I knew how he was doing. I just needed to see him. And I wanted to give Cynthia a chance to leave the room...to take a break.
He’s in the thick of chemo side effects right now. He really wasn’t awake much at all today. While they think they have his bacterial infection under control he’s still struggling with a fever. He’s on continual pain meds for his neck and leg pains. And the muconisitis (maybe that’s the name...his mouth sores) are in full force.
Today he had another blood transfusion and they are giving him potassium because his electrolytes are low...just anything to try and make him feel better, at this point. He’s also getting his IV nutrition.
He’s irritable and frustrated, rightfully so. He doesn’t want the lights on, and he doesn’t want to hear talking. And he’s vocal about it! “Stop talking!” And when the nurses open the door and it brightens the room he says “go away!” It makes me smile but it breaks my heart at the same time.
So Cynthia sits in the corner where the crack of light comes in from the window. It took a while but she was able to take a quick walk and get outside for a few minutes today. I rubbed his legs to keep him calm and comfortable. Praying that he turns the corner tomorrow and can start to feel better. Hoping the fever passes and his ANC starts to rise so we can start looking forward to him feeling better and coming home again soon.
Best part...I got an “I love you” when I was leaving.
~Aunt Amy
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